Hi guys, Welcome to the Advanced Video Search Engine, and you are watching Simi's Story. That video is uploaded by Int'l Fibrodysplasia Ossificans Progressiva Assoc at 2021-04-02T12:12:47-07:00. We are promoting this video only for entertainment and educational purpose only. So, I hope you like & enjoy it. [4n2GpQhBSbg]
| Name | Simi's Story |
| Video Uploader | Video From Int'l Fibrodysplasia Ossificans Progressiva Assoc |
| Upload Date | This Video Uploaded At 02-04-2021 19:12:47 |
| Video Discription | 💚 FOP (Fibrodysplasia Ossificans Progressiva) is an ultra-rare disease that turns muscle into bone, obstructing movement and hindering lives: https://ifopa.org/what_is_fop 🌎 The International FOP Association (IFOPA) is here to help find a cure through funding research, raising awareness, and supporting the community: https://ifopa.org/about_ifopa 👋🏽 CONNECT: https://fb.com/IFOPA https://instagram.com/cure_fop https://twitter.com/ifopa https://linkedin.com/company/international-fop-association 📬 Sign up for the newsletter and stay on top of the community and the path towards a cure: https://ifopa.org/connect 👨👩👧👦 Register for the next Family Gathering: https://ifopa.org/familygathering. Relive sessions from past Gatherings: https://ifopa.org/family_gathering 🛠️ Check out the Ability Toolbox Guidebook featuring tools and home adaptations for independent living: https://guidebook.ifopa.org 📆 Get involved with our family services, fundraising and awareness events: https://ifopa.org/calendar_of_events 📗 Learn the scientific terminology surrounding FOP in the IFOPA Glossary: https://ifopa.org/glossary ❤️ DONATE and join us to fight FOP and support families in their journey: https://ifopa.org/donate 🙋🏽 FOP Frequently Asked Questions: https://ifopa.org/fop_faq #cureFOP #RareDisease #disability #RAREParenting #caregiver 4n2GpQhBSbg |
| Category | Nonprofits & Activism |
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